Purple Day is a global grassroots event that was formed with the intention to increase worldwide awareness of epilepsy, and to dispel common myths and fears of this neurological disorder.[1] Further intentions of this movement are to reduce the social stigmas commonly endured by many individuals afflicted with the condition, to provide assurance and advocacy to those living with epilepsy, and to encourage individuals living with the condition to take action in their communities to achieve these aims. The day occurs annually on March 26.
Formation and history
editThe concept of Purple Day was initiated by a nine-year-old Canadian named Cassidy Megan, and was motivated by her own struggle with epilepsy.[2] The first Purple Day event was held on March 26, 2008, and is now known as the Purple Day for Epilepsy campaign. The Epilepsy Association of Nova Scotia joined Cassidy and helped to spread awareness of Cassidy's initiative.[3]
In 2009, the New York-based Anita Kaufmann Foundation and Epilepsy Association of Nova Scotia joined to launch Purple Day internationally and increase the involvement of organizations, schools, businesses, politicians and celebrities. On March 26, 2009, over 100,000 students, 95 workplaces and 116 politicians participated in Purple Day. In March 2009, the official USA Purple Day Party launch was organized by the Anita Kaufmann Foundation. Canadian Paul Shaffer of the Late Show with David Letterman attended the official launch at Dylan's Candy Bar in New York City.[citation needed]
In March 2012, Purple Day received the Royal Assent and became a legal day for epilepsy awareness in Canada.[4]
In December 2015, electronics retailer Dick Smith had arranged a major corporate partnership with Epilepsy Action Australia to support Purple Day in Australia with a $50,000 cash sponsorship, prizes and exclusive distribution of Purple Day merchandise.[5][6] A week prior to Purple Day celebrations in 2016, Dick Smith was placed in receivership.[7] Later, the Retail Food Group provided a $50,000 donation to match Dick Smith's previously promised sponsorship.[8][9]
The Anita Kaufmann Foundation owns the US trademark "Purple Day", Reg No. 4,055,0330, dated November 15, 2011. The Epilepsy Association of the Maritimes own the Canadian trademark "Purple Day" Cassidy Megan, founder of Purple Day is sole copywrite owner.[citation needed]
Description
edit Purple Day is held annually on March 26. Supporters are encouraged to wear a purple-coloured item of clothing. Purple is the international color for epilepsy and is also a color that symbolizes solitude.[citation needed]
The goal of Purple Day is to increase general public awareness, to reduce the social stigma endured by many individuals with the condition, and to empower individuals living with epilepsy to take action in their communities.[10]
Purple Day is celebrated in Australia to fund various epilepsy support organisations including Epilepsy Australia, Epilepsy Queensland, and Epilepsy Foundation.[citation needed]
During the 2018 edition of Purple Day, the Epilepsy Care Alliance called on the technology sector to push further innovations for the treatment for epilepsy.[11]
Purple Day was celebrated at Walt Disney World in Orlando, Florida, for the third year in a row on March 1, 2020. About 1,000 people attended. It included a morning with Minnie and Mickey and had expo and information sessions in the afternoon. Some topics were: Seizure Freedom and the Family, Still Having Seizures Despite Medication, CBD products: FDA approved vs. non FDA approved, Seizure clusters, rescue meds, and therapy options, The Early Years, Navigating Change, and Becoming Adults. The day ended with a visit to Epcot where Spaceship Earth turned purple in support of epilepsy awareness. There was also a $250 prize.[citation needed]
Guinness World Record
editIn 2017, a Guinness World Record was reached during Purple Day by the Anita Kaufmann Foundation for the achievement of the largest ever epilepsy training session.[12]
References
edit- ^ "Purple day - 26 March 2022 | Epilepsy Society". www.epilepsysociety.org.uk. 15 March 2020.
- ^ Carr, Flora (March 26, 2018). "People Are Wearing Purple Today for Epilepsy Awareness Day. Here's What That Is". Time. Retrieved April 18, 2018.
- ^ "Gold, silver, bronze...and now purple! Another inspiring Canadian kicks off Epilepsy Awarenss Month". www.newswire.ca. March 1, 2010. Retrieved July 4, 2017.
- ^ Canning, Nic (June 29, 2012). "Purple Day now legally recognized in Canada". Newswire.ca. Retrieved April 18, 2018.
- ^ "Dick Smith collapse leaves epilepsy charity high and dry". ABC News. January 7, 2016. Retrieved July 2, 2017.
- ^ Low, Catie (January 8, 2016). "Collapse leaves charity in a bind". The Sydney Morning Herald. p. 3.
- ^ "Dick Smith enters receivership due to bad sales". ABC News. January 5, 2016. Retrieved July 2, 2017.
- ^ "Charity in limbo gets help". The Age. Melbourne. January 19, 2016. p. 25.
- ^ "Sweet spot for Epilepsy Action Australia". St Marys Star. March 17, 2016.
- ^ "Three Cheers for Purple!". Canada Newswire. March 23, 2011.
- ^ Heathman, Amelia (March 26, 2018). "Purple Day: Epilepsy alliance urge tech investments to improve patient care". Standard.co.uk. Retrieved April 18, 2018.
- ^ "Largest epilepsy training session". Guinness World Records. Retrieved July 2, 2017.
Cited works and further reading
edit- Grant, Colin (2016). A Smell of Burning: The Story of Epilepsy. London: Boxtree Books. ISBN 978-0-224-10182-0.